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| MS in focus Issue
2
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2003
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By Christopher, James, Tara, Jessica, Alexandra and Michael |
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Six children, aged from 8-10 years, each of whom has a parent with MS, reviewed a special children’s website during two workshops set up by social workers from the MS Society of Victoria, Australia. Keep S’myelin is an award-winning publication of the National Multiple Sclerosis Society (USA) for children with parents or relatives with MS. It is published quarterly online, making it accessible to children all over the world. It provides age appropriate information about MS in a friendly, practical and fun way.
‘The website is fun, and it tells you about MS. It is easy to use. It would be easy for other kids to use if they don’t know anything about MS. It is colourful and the games are fun, not too hard. I enjoyed the word searches and other games.’ Christopher (10)
‘I thought the Keep S’myelin website was really good. My favourite part was the Fun and Games programme, especially the word search and the ‘can’ game. I found the stories to be very informative. A good place for people to find out about MS.’ James (8)
‘I liked the website Keep S’myelin. It was easy, not like all the other sites I’ve been to. The games were challenging and not too simple. It was easy to find my way around and it kept an archive of previous issues so I could play the past games. I liked the way the pictures were done and the way the kids on the links popped up when you put your mouse on them. I also liked the bits about other places, like Alaska, and how the moose was at the bus stop! But I got through everything very quickly and I think they should add more.’ Tara (11)
‘It’s really good. The games are OK.’ Michael (8)
‘The website Keep S’myelin tells us a lot about MS and can help us understand. The colours are nice and bright. I like how they have the stories and how it is set up. I like all the pictures. I can understand the stuff.’ Jessica (9)
‘It is really good, lots of variety, interactive rather than just reading a book. It’s colourful and helps kids understand about MS. Parents could support kids and help them learn more by reading the part for parents.’ Alexandra (10)
• Keep S’myelin is edited by Jennifer Ricklefs, Debra Frankel and Rosalind Kalb. The children at the workshops loved their introduction to the website, ignored the afternoon tea provided and kept on with the games. They thought that their teachers should know about it and spread the word further.
Keep S’myelin teaches kids about families living with MS around the world
Tara enjoys exploring Keep S’myelin
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