References

Foley FW & Werner M. (2000). Sexuality. In R.Kalb (Ed.) Multiple Sclerosis: The Questions You Have: The Answers You Need, 2cd ed. Demos Vermonde, New York City, New York.

Laumann EO, Paik A & Rosen RC. (1999). Sexual dysfunction in the United States: prevalence and predictors. Journal of the American Medical Association, Feb 10; 281 (6):537-44.

Sorgen-Sanders A, Foley FW, LaRocca NG & Zemon V (2000). The Multiple Sclerosis Intimacy and Sexuality Questionnaire-19 (MSISQ-19). Sexuality and Disability, Vol 18(1):3-26.

Zorzon M, Zivadinov R, Bosco A, Bragadin LM, Moretti R, Bonfigli L, Morassi P, Iona LG, & Cazzato G (1999). Sexual dysfunction in multiple sclerosis: a case control study. I. Frequency and comparison of groups. Multiple Sclerosis, Dec;(6):418-427.

Recommended Readings

Selected pamphlets from the US National Multiple Sclerosis Society, 733 3rd Ave., New York, NY 10017 USA (Customer Service: 212-986-3240; Information: 800-344-4867)

Barrett, M. Sexuality and Multiple Sclerosis (3rd edition) (available from the Multiple Sclerosis Society of Canada, 250 Bloor Street East, Suite 820, Toronto, Ontario M4W 3P9 Canada, Phone: 416-922-6065)

Foley, F.W. & Sanders, A. (1998). Sexuality and Multiple Sclerosis. In: J. Halper and N. Holland (Eds). The Multiple Sclerosis Self-Care Guide. Washington, D.C.: Paralyzed Veterans of America.

Foley, F.W.& Symonds, S. (1999). The impact of MS on sexuality and loving. London, England, Burnett Publications (Booklet available from the Multiple Sclerosis Society of Great Britain and Northern Ireland, 25 Effie Road, Fulham, London, SW61EE, England).

Kaplan HS. (1987). The Illustrated Manual of Sex Therapy (2nd edition). New York: Brunner Mazel Publishers.

Kroll K, Klein EL. (1992). Enabling Romance: A Guide to Love, Sex, and Relationships for the Disabled. New York: Harmony Books.

Mooney TO, Cole TM, Chilgren RA. (1975). Sexual Options for Paraplegics and Quadriplegics. Boston: Little, Brown.

Neistadt ME, Freda M. (1987). Choices: A Guide to Sex Counseling with Physically Disabled Adults. Malabar, FL: Robert E. Krieger Publishing.

Yaffe M, Fenwick E, Rosen R, Kellett J. (1992). Sexual Happiness for Women: A Practical Approach. New York: Henry Holt.

Yaffe M, Fenwick E, Rosen R, Kellett J. (1992). Sexual Happiness for Men: A Practical Approach. New York: Henry Holt.

Recommended Resources

The Sexuality Information and Education Council of the United States (SIECUS) has a Resource Center and Library located at 130 W. 42nd Street, Suite 350, N.Y., N.Y. 10036 (Phone: 212-819-9770). SIECUS publishes an annotated bibliography on sexuality and disability, which was updated in 1994. They also run database searches for more specific topics, utilizing their own extensive reference library.

Sexuality and Disability is a quarterly journal that publishes scholarly articles on rehabilitation, disability, and sexuality. It also publishes guidelines for professional clinical practice, case studies, and information for consumers. The journal is available from Kluwer Academic/Human Sciences Press, Inc., 233 Spring Street, New York, N.Y. 10013-1578 USA.

The American Association of Sex Educators, Counselors, and Therapists (AASECT) certifies professional sex therapists who can document that they have met their criteria for minimum educational and clinical experience standards. AASECT-certified therapists also must agree to adhere to a code of ethics. Although many highly qualified sex therapists do not choose to join AASECT, you can obtain a list of AASECT-certified sex therapists by writing to:
The American Association of Sexuality Educators, Counselors, and Therapists P.O. Box 1960 Ashland, VA 23005-1960
phone: 804-752-0026
fax: 804-752-0056
www.aasect.org
aasect@aasect.org


Planned Parenthood is a US national organization that provides information on abortion and birth control. However, some chapters conduct sex counseling, and the chapters can provide competent local referrals for sex therapy and counseling. The national office is located at 810 Seventh Ave., New York, NY 10019 USA.

There are a number of discreet catalogue services available that sell sexually oriented materials and promise anonymity to their customers. Most of these are not targeted toward people with disabilities, but they contain products that may be helpful to both disabled and nondisabled people. Some include:

Eve's Garden International, Ltd. sells books, videos, and sexual aids/toys. Their catalogue can be ordered from their offices at 119 W. 57th Street, Suite 420, New York, N.Y. 10019-2383. (Phone: 800-848-3837).

Good Vibrations, Inc. offers similar fare. Their catalogue can be ordered from 938 Howard Street, San Francisco, CA 94103 (Phone: 415-974-8990; 800-289-8423).

Lawrence Research offers a catalogue full of sexual novelties and aids, videos, and books, called the Xandria Collection catalogue. They also have a small catalogue that targets those with disabilities (cost $4.00) and can be reached by mail at P.O. Box 31039, San Francisco, CA 94131 (Phone: 800-242-2823; call extension 39 for additional information).

Information on acquiring the Osbon Medical Systems Erect-Aid, which is a vacuum device to aid obtaining and maintaining erections, is available at: Amassed Data, 6230 Wilshire Blvd., pMb #223, Los Angeles, California 90048 USA. Their customer support information number is country calling code # + 323-655-8344. They can also be reached on-line at http://www.newremedies.com.

The Multiple Sclerosis Intimacy and Sexuality Questionnaire-19 (MSISQ-19 - see Sexual Changes) is a 19-item self-report instrument that measures primary, secondary, and tertiary sexual dysfunction in MS. It is used to assess these dimensions of sexuality, and can be utilized to educate health-care providers about which dimensions of sexuality need treatment.